We’ve been seeing a dietist. It’s a constant struggle, trying to get Abbe to eat, and they’re helping us us find out the reasons for him not wanting to.
Feeding times are still 07, 10, 13, 16, 19, 23 and 03 and we still give him the milk-free substitute. We still take carefull notes on how many milliliters he actually eats, we dare not do anything else. We’ve also tried giving him puree. It's not going too well.
Why is this such a problem? Is it a technical thing? Does he have anatomical impediments? Mouth-motorics, cleft palate, all that stuff? It’s a huge stress factor, this constant struggle against the weight and length diagrams.
We told the dietist about our DIY-cardex, our lists of Abbe’s milliliters. She smiled and asked:
–How much does he eat in a day?
–Eh…700ml, we answered.
–And does it vary a lot, from day to day?
–No…
–Why don’t you stop taking notes, then, and relax a little? You know pretty well, don’t you? That he’s getting enough?
Sometimes you feel like a complete idiot.
About this blog.
Abbe is the greatest little character. A fighter with a congenital heart defect. A sweetheart with a chromosomal aberration. These are my memos and thoughts from Abbes birth and on.
.... If you want to follow us from day one, please scroll to the bottom of the blog - to mid-March 2005.
....The postings are currently being translated from Swedish to English. Eventually we will reach todays date.
.... Then you can read it from the top, like a usual blog. About an unusual boy.
.... If you want to follow us from day one, please scroll to the bottom of the blog - to mid-March 2005.
....The postings are currently being translated from Swedish to English. Eventually we will reach todays date.
.... Then you can read it from the top, like a usual blog. About an unusual boy.
Who comments?
What does it mean?
"Heja Abbe & Brorsan" is Swedish and translates roughly into "Go Abbe & Bro". I didn't translate it because I kind of like the header the way it is.
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